Ryan's World
The Voice of a Preemie
by
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Being the Mother of a special child means constant caring. It means nurturing; it means listening to others giving advice or relating comparison stories and noticing curious stares. In Ryan’s case, it means listening to questions over and over all her waking hours. It means awareness of the threat of seizures and paralyzing terror during the devastation of critical times. The desire for solitude and privacy is sometimes beyond alarm. It means having the wisdom and understanding to deal with the facts; the recognition of behavioral changes demands a quest for freedom and imagination of normalcy. It also means looking into the eye of a soul more beautiful than ever imagined. It means a better understanding of oneself and how God has singled you out, knowing you are equipped with the skill and the drive to accept his offer of such a precious gift. God’s love shines every day through the heart of my special daughter. Her joy and zest for perfect day is unending.
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About the Book
The book begins with the voice of a premature embryo speaking from the womb. The story chronicles events, consequences, results and outcomes of the unexpected. This is a book with a purpose, written to instill a promise of hope to families struggling with disabilities and targeted to a society influenced by feeling, sympathy and curiosity.
Faiths and strengths from family members influencing and becoming influenced by the birth and development of a special needs little girl, following her through a journey of life, are told through photographs and special accounts supporting a particular purpose, giving significance to the spirit of a challenged life.
Inspiration comes from the knowledge of countless children born too soon for their families to expect help through support organizations. It comes from knowledge of cruelty in an uneducated society many decades ago, looking upon the special needs members of our communities as wasted and unwanted, forcing them to live in institutions. Inspiration comes from the work of Eunice Kennedy Schriver, realizing the compassion and conscious emotion of the special needs, and working to provide training and sports through the Special Olympics.
Written to instill a promise of hope for families having experienced the initial overwhelming shock of hearing their child has developmental disabilities, ”Ryan’s World” means to give support through the toughest of times. The book, meant to give a spirit of compassion and optimism to the disabled reminds them of incredible opportunities available to make a difference in a life once thought of as unessential.
The book, written by one, who has shared the anxiety and heartache, and importance of belonging in the world of a family member with a particular purpose, bringing delight, joy, happiness and inspirational vision of life’s significance in a world of tumult.
About the Author
Barbara Sullivan Nelson is a native of Middletown, Ohio now living in Kentucky. She is the author of a murder mystery published in 2007 and several inspiring articles. After a career in business management, she now focuses on her first love, the written word.